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Resources for Your Patients

Policy and Resources

Resources for Your Patients

Support Organizations

The following organizations based in North America provide information, advocacy and support for people with celiac disease and gluten sensitivity:

INTERNATIONAL

Celiac Disease Foundation
5850 Canoga Avenue
Fourth Floor
Woodland Hills, CA 91367
Toll Free: 844.593.8169 x118
info@celiac.org

CANADA

Celiac Canada
5025 Orbitor Drive,
Building 1 — Suite 400,
Mississauga, ON L4W 4Y5 Canada
Toll Free: 800-363-7296

USA

Beyond Celiac
PO Box 544
Ambler, PA 19002-0544
Phone: 215-325-1306
Toll Free: 844-856-6692

Celiac Disease Foundation
5850 Canoga Avenue
Fourth Floor
Woodland Hills, CA 91367
Toll Free: 844.593.8169 x118
info@celiac.org

The Gluten Intolerance Group
31214 124th Ave SE
Auburn, WA 98092
Phone: 253-833-6655

National Celiac Association
20 Pickering Street
Needham, MA 02492
Phone: 617-262-5422

Live and Virtual Classes Open to Patients Nationally/Internationally

 

Culinary Medicine Classes from the Celiac Disease Foundation

Culinary medicine is an evidence-based field that brings together medical, nutrition, and culinary knowledge to assist patients in maintaining health, preventing, and treating disease by choosing high-quality, healthy foods in conjunction with appropriate medical care. By utilizing practical approaches to assist patients in unlocking the benefits of food as medicine, providers can reinforce dietary management as the treatment for celiac disease. The Innovations in Culinary Medicine Pilot Project will include a series of quarterly webinars, each led by experts in the field, covering topics ranging from the latest research in celiac disease to nutrition strategies tailored for individuals with gluten-related disorders. The sessions will also feature live cooking demonstrations conducted by skilled chef educators certified by Harvard Medical School and the Institute of Lifestyle Medicine. Webinars are accredited by the Boston Children’s Hospital Continuing Education Department for 1.0 AMA PRA Category 1 Credits™ for physicians and 1.0 CEUs for Registered Dietitians.

Learn More and Register: https://celiac.org/culinary-medicine-webinars/

 

School Support Sessions from the Celiac Disease Foundation

Having a structured 504 Plan in place is crucial for all students with celiac disease, especially those attending public schools or those that receive federal funding. The Celiac Disease Foundation School Support Sessions represent the first ever national celiac disease education partnership with Boston Children’s Hospital, the University of Chicago Celiac Disease Center, and the Mayo Clinic. The sessions will be held monthly and be open to all parents of a child with celiac disease in the United States. Each session will be led by an on expert on setting up 504 plans specific to celiac disease and will cover federal laws and regulations that govern this autoimmune disease, the appropriate type of plan to set up, reasonable accommodations, and how to get individual support for your family. This meeting is appropriate for families with a child of any age including early childhood through college.

Learn More and Register: https://celiac.org/school-support-sessions/ 

 

Celiac Teen Talk! For Your Teenage Patients with Celiac Disease

Are you a teen with celiac disease living the gluten-free life? Join our vibrant community and be part of the Celiac Teen Talk club, where your voice matters, and your favorite gluten-free products take center stage! Forge connections with like-minded teens who understand the ins and outs of navigating the gluten-free world. Share your experiences, tips, and hacks! Each month engage in fun and interactive virtual meetups where we dive into the latest and greatest in the gluten-free world. From taste tests to sharing recipes, every month is a new adventure!

Note: Sessions are designed for teens ages 13-17 to engage and provide peer-to-peer support. We ask that parents and guardians step aside and let their teens attend on their own. 

Featuring Gabrielle Hemond, “No Gluten Gabby,” as the host (plus special guests each session).

Learn More and Register: https://celiac.org/teen-talk/ 

 

Living with Celiac Disease Virtual Meet-Ups

Are you diagnosed with celiac disease? Join the Celiac Disease Foundation and experts in the community for our monthly “Living with Celiac Virtual Meet-Up.” During this one-hour session, you’ll gain valuable insights from celiac experts who will provide practical tips, resources, and guidance on thriving with your diagnosis. And you’ll meet others who are navigating the gluten-free diet, share your experiences, questions, and triumphs in a supportive and understanding environment. Topics will vary by month.

Learn More and Register: https://us02web.zoom.us/webinar/register/WN_W3v7rYPFQDereDEX24AJ-g#/registration

Resources for Food Pantries with Gluten Free Options

Food Pantry Registry:

Search by state for food pantries with gluten free options. Be aware some food pantries may require a letter of medical necessity for gluten free foods from your doctor. It is advised to call prior to visiting the food pantry to learn of any other requirements. 

https://nationalceliac.org/gluten-free-food-pantries

     

Celiac Disease Food Insecurity Resource Network: 

The Celiac Disease Food Insecurity Resource Network (CD-FIRN) program provides monthly nutritious gluten-free food boxes to food insecure families living with celiac disease. It also offers comprehensive nutrition education and cooking classes free of charge. Administered by the Celiac Disease Foundation, CD-FIRN will bring together hospital centers around the United States to implement food insecurity screening programs and then allow the medical providers at each institution to enroll their patients in the CD-FIRN Program to receive direct food resources. This program requires physician referral. Physicians wishing to enroll their patients should email vanessa.weisbrod@celiac.org to learn about enrolling their patients.

 

GIG Cares 

GIG cares is an organization working to eliminate barriers for the gluten free diet. The gluten free diet costs on average 183% more, increasing the rate of food in security to 1 out of 6 celiac patients. Apply for a care package and access resources on affordable gluten free grocery shopping. 

https://www.gigcares.org/ 

 

Feeding Gluten Free 

Feeding Gluten Free is a program working to address the concerns of food insecurity amongst those with celiac disease. This program works with food pantries to provide gluten free food and education. 

https://nationalceliac.org/feeding-gluten-free/

Summer Camps, Travel, other

 

Summer Camps for Children with Celiac Disease 

Search by state for various kids summer camp programs for children with celiac disease. 

https://www.celiackidsconnection.org/2017/02/20/gluten-free-summer-camps/ 

 

Celiac Cruise  

https://celiaccruise.com/   

 

Tax Deduction Information 

https://celiac.org/gluten-free-living/federal-benefits/tax-deductions/